Reclaiming Sexuality after Cancer

Lynn, age 50+, phoned to order several of my books and she told me her story of trying to reclaim her sexuality after cancer. I encouraged Lynn to share her story with you here:

I was diagnosed with cancer in my mid 30’s and was given a grim prognosis of 3-5 years to live. Thanks to medical research trials and multiple treatments, I have survived over 3 times that long. Through the years I have met other cancer survivors who are struggling to deal with their questions about sexuality after cancer.

Part of my cancer treatment was a stem cell transplant that involved both chemotherapy and radiation which put me into premature menopause. I had a medical condition which made me susceptible to blood clots, so hormone replacement in any form was not an option.

The resulting sexual problems were sudden and unexpected and left me with feelings of grief and loss that were hard to put into words. At times I felt like “You should just be thankful to be alive,” but I wasn’t ready to give up my sexuality.

I began to search for information. One cancer newsletter’s “Ask the Doctor” column confirmed that many readers had asked the same questions about sexual problems following this particular treatment. The American Cancer Society has a publication titled, “Sexuality and Cancer.” Both of these resources mentioned that there are many women who cannot take hormone replacement therapy and suggested that people should discuss “options for facilitating sexuality” with their doctors.

When I asked my oncologist for help, he was too embarrassed to talk about sexual problems and practically ran out of the exam room. He could have at least referred me to another medical resource. Although we passed the turn of the century, some medical providers are still in the “dark ages” when it comes to addressing the sexual problems of cancer survivors.

I went to a cancer survivor’s conference at a large medical center in another city. One of the sessions was about cancer and sexuality. I sat next to a woman who had been through treatment identical to mine and also had the same blood clotting disorder which ruled out HRT. We were both blessed with partners that did not walk out the door when the cancer diagnosis arrived, but we missed the giving involved in making love to our partner and meeting their needs for intimacy as much as the pleasure we had derived from it ourselves.

Some people came to the group session accompanied by their partners – the standard response from the partner without cancer was “I’m just glad my partner is alive,” but the cancer survivors were not content with that. They went on to express their deep emotions and struggles. “First I was diagnosed, then I had treatment – I’m thankful I survived, but I am still working through the loss of my sexuality.”

The oncology professional who was the group facilitator listened, and could see that this was an important subject that needed to be given more attention in the future. I left feeling like at last we were heard, but I was still lacking practical information and resources.

I am now over 50 and my cancer is in a durable remission, but I was beginning to believe that I was probably “too old” to be hopeful about ever being sexually active again. I lacked the courage to ask another Dr. or medical professional for help to address sexual problems.

I’m so glad I found your blog – I read the post “a man asks about sex after prostate cancer” and was impressed by the personal interest you took in responding to his questions.

I went to your website to order your book and read, “Joy isn’t age-bound. Neither is sexuality or fitness.” Discovering that you have also faced challenges as a result of two car accidents and refused to give up was an encouragement to me. Your statement, “I had to get back to having a life”, really sums up where I am at currently. Your story inspired me with a “spark of hope” and I also found the resources that I need to begin working on regaining physical fitness and sexual function!

Lynn, thank you for sharing your experience and your thoughts. When you told me about your oncologist bolting out of the room when you asked about sexuality, I was shocked and outraged. Sexuality and intimacy are so much a part of what binds us to our partner and makes us fully human. How can doctors not understand this or help us reclaim that vital part of our being when we ask for help?

I know doctors get very little training in sexuality, and I’ve written about this here. Fortunately, there are some wonderful sex therapists and sex educators who are doing a great job in this arena, and I encourage you to find one of these in your area.

I am so happy that you survived cancer, and I wish you the best success reclaiming the joy of your sexuality. Please keep us posted about what you do and what you learn.

Best,

— Joan

Too soon to be intimate with new man after spouse dies?

Susan, age 65, sent me this email regarding intimacy after death of spouse, with permission to post it and respond here:

Joan, I found your website while browsing and really enjoyed it. I was widowed 5 months ago, and a friend of mine lost his wife shortly before my husband’s death. We had known each other casually for 20 years.

A social event brought us face to face about a month ago and we both have been smitten since that night. We are both young for our ages; both being 65, good physical condition and both exercise daily. I am experiencing a lot of guilt from wanting to see him after such a short span of time since my husband’s death. Although he has discussed me with his family and I with mine, I still have some guilt. I also, don’t hear the “approval” from other members of my family.

However, at our ages, how long is considered appropriate? I am also experiencing whether or not this could become a moral issue with me. He is a wonderful man, who cared for his wife, who was ill for many years, as I did for my husband.

He has expressed to me that he may be impotent. He had not had sexual relations with his wife for many years before her death, nor had I with my husband. I did, however, use a vibrator from time to time. Although I am 65, I certainly have been experiencing strong sexual feelings toward him.

I guess my questions to you are:
1) what is the appropriate time frame?
2) Is sex outside of marriage a moral and/or guilt issue?
3) How do I get rid of trying to please everyone else?
4) Should we pursue sexual intercourse or just “play around”?

Thank you so much for your input and can’t wait to get your book!

Susan, thank you so much for writing and for sharing these feelings.

I can’t tell you what the appropriate time frame for sharing intimacy after the death of a spouse is for YOU. I’m not a therapist, but I’ve heard some therapists say that it’s good to wait a year, because people need to grieve, then rediscover and reclaim who they are alone before they’re ready to enter into a new relationship.

I’ve also heard from/about people who were caretakers of ill spouses and did much of their grieving while their spouses were alive. They then needed to reach out to someone who could bring joy and intimacy back into their lives.

I can’t say what’s “right” for you — only you can know that. If you’re questioning whether it’s too soon, that maybe that’s your own heart saying it is. If this relationship will be right for the two of you, it will be right if you wait a few more months, too.

Meanwhile, you can develop a friendship and enjoy each other’s company. But do learn to enjoy your own company, too — see who you are on your own in the world, what interests you’d like to pursue now.

Of course you still have sexual feelings — glory in that wonderful gift, and let your fantasies roam. When you and your friend come together in that intimate way, if you decide to, you’ll be good and ready for his tender touch.

You say your family hasn’t expressed approval of your new relationship. Realize that they are still grieving your husband, too. Respect their feelings, and if/when you decide to go ahead with this new relationship, perhaps it would be best not to tell them until and unless they ask, at least for a while.

As for sex outside of marriage, that’s completely your decision. I don’t know your beliefs or your religion, or whether these values might be changing at this time of your life. You might find it useful to consult a counselor to get your own values and needs in perspective.

Your friend told you that he might be impotent. Please suggest that he see a urologist and find out the cause, and whether any treatment is appropriate. If he is unable to have erections, you can still have loving, intimate sex in other ways. I have more information about that in my book “Sex After Grief“, in the chapter titled “When You or Your Partner Can’t.”

I’m sure that Susan would like to hear from others who have gone through this, and from others who have an opinion on when to have intimacy after the death of a spouse. I invite you to comment.

— Joan

How do you handle sex and dating?

You’re dating again, after years, maybe decades, away from the dating scene. How do you handle sex with a new person? Do you use/require condoms? Do you get tested for HIV and other STDs and request the same from your partner? What questions do you ask? In other words, what steps do you take to protect your sexual health?

When Robert and I started dating, we used condoms, talked openly about our previous experiences, and got tested. I don’t know if most people our age do that, or if they assume that they’re not at risk. I’d love to hear from you about this.

I wish I had included this topic in my book, and I may include it in a future magazine article. Please either post your comments here or email them to me, and I’ll post them for you.

Thanks —

Joan

10/21 update: Some very interesting comments have begun to appear on this topic — if they don’t display automatically for you below this post, click “comments” to view them. Please keep your comments coming!

Ottawa Sun: “right into the nitty-gritty”


I love this article by lifestyle columnist Ann Marie McQueen in the Ottawa Sun today!

Ageless Sex Advice
Author touting the benefits of nookie after 60 during stop at local adult shop

By Ann Marie McQueen, Ottawa Sun

After I suggest to California author Joan Price she seems to have landed the world’s greatest sixtysomething man — scratch that, the greatest man of any age — she launches right into the nitty-gritty.

They’re out there, says the author of Better Than I Expected:Straight Talk About Sex After Sixty, who is coming to Ottawa this weekend to give two workshops on the topic at downtown sex shop Venus Envy.

The men she speaks of, like her Robert, came of age in the 1960s too, and many of them want to be with their female contemporaries, want to find ways to make sex good with them, no matter what their aging bodies say about it, says Price.

She gathers steam as she describes such men, who will listen as women say things like, “let’s see what we can do about my thinning vaginal tissues, about my lack of lubrication.”

She stops suddenly.

“This may be too frank for you.”

“No, no,”I say, realizing I had starting chuckling out loud right about the time Price said “thinning vaginal tissues.”

“It’s fine.”

“You all right?”she says once more, sweetly, before forging ahead ” — what can we do about my slow arousal, what can we do about the time it takes to reach orgasm?”

If you are below 50, and before you start going ‘ewwww’ at the priceless Price, it might be time to think about where your own life is headed. That’s right. Straight to 60, and beyond. Might be time to pay attention. And ditch the attitude, such as the kind embodied in Louise Rafkin’s article for the San Francisco Chronicle magazine, headlined “Now that Baby Boomers have discovered there’s sex after 60, could they please stop writing about it?”

It’s not very likely Price is going to do anything of the kind. In fact, she’s made it her mission to speak on it as much, and as frankly, as possible.

“If you want to be a sexual person, you’ve gotta really make a commitment to it, you’ve really gotta say, ‘I’m gonna love my wrinkles, I’m gonna love my sags, I’m gonna love my partner’s wrinkles and sags and we’re gonna find ways to rejuvenate the relationship,’ ” she said.

While the one-time English teacher, fitness professional and author was penning Better, Gail Sheehy would be building on the success of her book Passages 30 years ago with Sex and the Seasoned Woman, which was all over the morning TV shows, Internet and newspapers when it came out in January.

Fitting, really, considering Price blames the media for the dim light cast on aging women.

“It has never portrayed the older woman as sexy, understanding herself, self-confident, self-knowledgeable, self-affirming and that that’s a good thing,” says the California-based Price.
If women are shown as sexual when they are older, it’s either perceived as ground-breaking (Diane Keaton in Something’s Gotta Give) or predatory and pathetic (a turn by actress Holland Taylor on Boston Legal’s predecessor The Practice). They are invisible in magazines, says Price, who is determined to build on the current wave of awareness.

“I want it to seem normal for one,” she says, “and I want people who have not come out of the woodwork to talk about it, and they are.”

Price’s perky, inspirational book offers not academic theories but practical expertise. It is filled with concrete tips — say, instructions for how to use a vibrator — and she’s-been there-anecdotes about everything from exercise, to hormone replacement therapy.

She’s even delighting in holding her Straight Talk About Sex After Sixty workshops in new-generation adult stores like Venus Envy. Drawing people who’ve never visited them, helping them realize the sex-related treasures they hold, is another of Price’s goals.

“They are places filled with joy and laughter, and the attitude that sensuality and sexuality are great pleasures for us,” she said. “And they are just showing us ways we can enhance those pleasures.”

Price will give two workshops this weekend, each from 6:30-8:30 p.m. Saturday’s is open to women and men, while Sunday’s is limited to women. The cost is $25. For information, call the store at 789-4646.